Sunday, November 30, 2008
Precious
Today's blog is in loving remembrance of my niece, Precious Hope. Precious was born and entered into rest on Nov. 30, 2002. I catch myself thinking about her from time to time. Would she have the curly hair her sisters have? Eyes as blue as the sky like little Shainy's? Would she be the big shot goalie like her big sis Sam? Sadly, we will never know. She is greatly missed by a multitude of family members.
Thursday, November 13, 2008
My mom, my mother-in-law , and I recently shared a girls night out friday night. We went to Cleveland to see An Evening with Scott Hamilton and Friends. For those of you who don't remember Scott Hamilton he is an Olympic figure skating champion who was diagnosed with testicular cancer back in 1997. He underwent a regime of successful chemotherapy treatments, surgery and recuperation. Instead of picking up where he left off in the world of figure skating, he felt he needed to do something more for others suffering from cancer. Scott founded the Scott Hamilton CARES Initiative ( Cancer Alliance for Research, Education and Survivorship) and is also a spokesperson for the Cleveland Clinic Taussig Cancer Institute. The CARES Initiative was started by Scott in order to raise cancer awareness while at the same time raising the money to fund such research to help for a cure for all types of cancer. Scott's mission is "to erradicate cancer in my lifetime." So back to friday evening, the ice show we went to see is only put on once a year to raise funds for the CARES Initiative and to give back to the people of Cleveland. The most amazing part of the evening was not the skaters, it was a young 16 year-old boy. This boy is in his second year of fundraising for cancer reasearch. During the brief intermission, he presented the Taussig Cancer Institute with a check for $108,000! His goal next year is to raise $250,000! I could not believe it, a young boy who should be worried about football games or girlfriends or what to do to on a friday night was spending his time raising money for cancer! How amazing!
My new job is going well. In fact, I love it! Last week I spent a couple of days in Cleveland for the 11th annual Innovations in Neurscience Nursing Conference. It was 3 days packed full of information. I think my favorite lecture was the one on mitochondrial disorders. In that particular lecture we learned about a study that was done in Portugal that could link a form of autism to a mitochondrial disorder which in turn could lead to a treatment! The study only showed a small percentage and it's virtually impossible to replicate that study here in the states, but it has paved a path.
Brynn is keeping busy with school- she loves it! She is slowly becoming a little adult! Just ask her dad, the other day he was trying to talk to her and she gave him the old "whatever" with the hand wave. That was priceless! I keep hearing that she acts more and more "like her mother!" I beg to differ. I would love to say it's the female gene, but she is one heck of a tomboy, too. On a recent trip to the circus, her favorite part was the dirtbikes. She couldn't wait to see the dirtbikes! When they finally came out she could hardly sit in her seat! None the less she does have her girlie moments, like screaming at the top of her lungs when anything Jonas Brothers comes across the radio or tv! And lets not even get started on High School Musical, Hannah Montana and iCarly.
As for Kael-he's content with putting his puzzles together and riding in the combine with "pa." He has his little perch, which happens to be my dads armrest, that he has to sit on when he's riding with "pa." He doesn't want the buddy seat it's attached to, he wants the armrest right next to "pa." I think my dad was ready to have a little boy around to share his passion for tractors with. After 4 girls (3 living)-and one more possibly on the way (I'm going to be auntie again!)- who could blame him! Kael is my little cuddlebug. He catches me offguard sometimes when he comes up, gives me a hug and says "Mommy your my best friend." By the way- those were his exact words after receiving his Flumist at the docotor's office one day. I think without a doubt he is going to be quite the ladies man! As Todd would say- "Just like his daddy."
Wednesday, September 10, 2008
Doctor day...
As for the rest of the clan, Brynn will be starting her second year of preschool next week! I still can't believe how much my baby is growing. She never ceases to amaze me with some of her antics! Anyone that knows her, knows just how much energy she has. I wish I could say that it just oozes out of her, however if that were true I would surely pick up some of her reserves. Since she needed an outlet for all that energy and she loves any and all kind of sports, we signed her up for soccer. We had clinics all last week and she showed them what she had to offer, which by the way will not be goalkeeper! During one of the scrimmages, coach put her in goal. Apparently there was not enough action on her end of the field because she began pretending the goal posts were monkey bars. If that weren't enough, she decided it was break time so she ran off the field, grabbed her water bottle and took a seat! We couldn't contain the giggles! She simply stated "Daddy, I needed a water break." That's our B!
Kael is beginning to enter the dreaded "terrible two's". He is a little man with a very large temper. Potty training is his event this fall. There are days when he will just scream "I want my mommy" or "I want my daddy" between sniffles while he sits on the potty. My absolute favorite moment was one evening when I was getting them ready for bed. I sat Kael on the potty beside his big sis, well he couldn't go. So I stood him up to the potty and I told him to try and hit the little hole down in the bowl. He stood there for a time just looking and then ever so innocently he said, "Mommy, it broke. It won't work." I really don't think I made it through the bedtime story without giggling!
As for me, I recently started my new job at the Clinic. After getting moved around in the different departments, unbeknownst to me I'm told, I have finally ended up in Neurology. I'm really looking forward to the challenge! As I opened a new door, I had to close one. I finally shut the door on my family and friends at Buehler's after nearly 11 years of service. So for those of you in my Buehler family that may be reading this- it was really hard to walk out that door for the last time last week.
Tuesday, August 26, 2008
Just a dream
It was so nice to be away from home, to forget about all tests and doctor visits. It's that easy come, easy go lifestyle I love. I'd have to say that this vacation will definately not be forgotten. We won't forget about those sharks, dolphins or jellyfish that paid us a friendly, but scrary, visit. The sand dollars were amazing, not to mention the starfish. We have taken several trips to the beach, but I don't think my eyes have been open, nor my mind, to the colors, sounds or smells quite like this trip. This trip was much more appreciative because my husband was by my side to share it with me. Until this past May I never once thought of anything happening to him. I never thought there would come a day when I had to think about losing my best friend, my soul mate. Unfortunately, that day came. If there is anything I've learned from this is that I take to many things for granite.
We walked through the doors of the CTC for one last time today. I have to hand it to the staff in there. They are amazing! For the type of people they take care of and what they do, you can feel the warmth there. They truly care. In fact, as we walked in the receptionist was saying "Hi, Todd" with a huge smile on her face. Once down the hall I heard another ask, "So how was the vacation?" and she really wanted to hear about it. Really I can not say enough about the staff in there, I'm so glad that they took such good care of Todd. They really made him feel like part of the family and not just another patient coming in for treatment.
As for the actual visit- Dr. Seider is done with him until his check up next August!! He said he felt everything went well and all looks good. Our next step is Dr. Kraus, the Urologist, at Aultman. He will read the results from the CT and bHCG tests Todd had two weeks ago. If all goes well there it will be a series of CT scans and bHCG tests every three months for the next year or two.
Saturday, August 2, 2008
Vacation ready
Our doctor visits will start next week. On August 5th Todd will have his follow-up CT scan for Dr. Kraus (Urologist) then on August 6th he will be seeing his Otolaryngologist Dr. Weber (more commonly known as the "ear doctor"). Following vacation he will have another PET scan for Dr. Seiders (Radiation Oncologist) along with a visit, and a few days later is scheduled to see Dr. Kraus.
This past Saturday there was an amazing article on the front page of the sports section in the Daily Record about a 20-year old junior A hockey player for the Wooster Oilers. Corey McDevitt made it known to the press that he is currently battling testicular cancer. Diagnosed in March of this year, Corey has already been treated once. Three weeks ago his blood tests came back to show the cancer had returned, this time appearing in the lungs. Right now he is currently undergoing chemotherapy at the Cleveland Clinic Wooster. Every three weeks he finds himself having seven-hour treatments five days a week. Yes, I said seven! What's even more amazing is that he wears his ice skates to every treatment. He has been proclaiming to be ready to hit the ice come Halloween! Talk about determination! That is what it takes to come out on top. He aslo mentioned that his inspiration comes from none other than Lance Armstrong. I have already sent an email to lend support to this young man, if anyone else would like to do so he can recieve letters at: Alice Noble Ice Arena, 851 Oldman Road, Wooster, Ohio 44691 or emails can be sent to coachhart@nc.rr.com. Also if anyone is interested, the title of Lance Armstrong's book is "It's not about the bike."
As for Todd's aunt Sandy, she had her surgery and is doing well. I believe she is going to be starting her chemo in the next week or two. From my understanding she will be seeing Dr. Stallings, a Medical Oncologist, here in Wooster.
Although everyone has done so much for us already, I would like to ask that you still keep our family in your thoughts as we are still not in the clear yet and unsure if we will ever be.
Sunday, July 20, 2008
Bittersweet
Todd was worried about being fatigued when we go on vacation, but the nurse assured him that within a week he should start feeling less tired.
For those of you who believe in superstitions, on the day of Todd's last treatment we seemingly adopted a little black kitten, appropriately named Midnight by pawpaw Larry. It came out of the cow pasture and perched itself, with help from Java, up on the fence post where it stayed for hours until Todd came to the rescue. Kael, my little animal lover, just can't get enough of it and Brynn likes it until it starts to get playful with her then she starts running through the yard crying "It's chasing me! Get it away!". So I guess our family has grown by one more!
Monday, July 14, 2008
Heading for home
The radiation is finally starting to catch up with Todd. This last weekend he found himself dipping into the Compazine quite a few times. He gets hungry, takes a few bites and then ends up feeling sick or gets a faint aroma of something and gets sick. At his appointment today he told the nurse how he had been feeling lately and her reply was that now he knew what being pregnant was like. I must have been in the back of his mind somewhere because his response to her was "No I wouldn't say that to my wife because she'd say "no you don't know how it feels to be pregnant!""
Looking back I still can't believe how this all happened. Life can change in just the blink of an eye. As much as I felt like blaming someone in the beginning, I came to the realization that this is our plan. This plan was in the making long before that first date many years ago and I'm ok with that. I'm a firm believer of things happening for a reason and I have learned to just roll with the punches and things will get better. One day coming out of the CTC Todd mentioned how it hurt him to see some of the other patients in there looking so fragile while at the same time he's walking out full of energy. So on days when I feel like crumbling, I stand tall realizing that someone out there has it far worse than me.
Sunday, July 6, 2008
Time away
As for Todd, he's doing well. He missed two days worth of his medicine and I think it might have caught up with him. Friday night he had the misfortune of getting a little sick. He's still not sure whether it was something he ate or if it was because he missed taking his pills before his treatment the last 2 times. All was well the following morning though.
The countdowns have now begun- 2 more weeks of treatment and 5 weeks and 4days until our much needed vacation at Hilton Head!!! Happy 4th everyone!!!
Thursday, June 26, 2008
15 sessions and counting
Moving onto his actual treatment. They laid him down on a "table-like" bed where he got tattoed again on his abdomen and sides. The tatt's are actual cross-hairs and the other markings on his abdomen look almost like a roadmap. Before they started he said they had to reposition him several times to line the cross-hair's up with the radiation machine. While under the machine you have to lay totally still when it shoots the radiation on top of you (stomach) and then underneath you (back). Todd said that the actual treatment took less than 5 minutes and said it's just like getting an x-ray. The positioning is what takes the most time because you have to be perfectly positioned the same way everytime so the radiation hits the exact same spots everytime.
We were forewarned that he may have some bouts of nausea, so Dr. Seider did give him a prescription for Compazine which is a pretty nasty antiemetic. He has to take that every day before his treatment and then as needed. I asked him how he felt when he was done today and he seemed to feel pretty good. He wasn't feeling nauseated or tired.
Brynn and Kael are still fascinated by daddy's new body markings. I'm just waiting for her to get a hold of the markers and start marking herself (or Kael) all over! I can just hear it now, "Mommy, I look like daddy!" Thank goodness for washable markers and bathtubs! She already likes to give Grandpa Larry tattoes when he falls asleep on the couch! I guess we have an aspiring tattoo artist among us.
Monday, June 23, 2008
The second time around...
Wednesday, June 18, 2008
Dr. Weber, Hillcrest Atrium
Today he had a follow-up visit with Dr. Weber. Everything seems to be healing well and they believe they cut out all of the infection. He will go back in August to have his hearing reexamined and then he will have some rehabilitation in that ear. I'm not exactly sure how they are going to do that because I didn't go to this appointment with him so I'm only going on what he told me. It does sound kind of crazy though!
So I guess you could say we have had a rather hectic last couple of months! As Todd would say, "I turned 30 and things started falling apart!"
Monday, June 16, 2008
Laughter's the best medicine
Fast forward to the morning- Todd drank the GoLYTELY like he was supposed to. Even when his gut told him enough was enough he followed the instructions to drink the whole gallon. He arrived at the hospital to be prepped for the PET scan. He had his IV dose of radioactive material (to light him up like a Christmas tree) when he learned that there was some difficulties with the machine. Long story short, next Sunday he has to repeat the GoLYTELY! However, next Sunday, he will be eating supper a little earlier and will likely only drink 1/2 the gallon. For those of you who have ever had a bowel prep it's likely you can understand.
Saturday, June 14, 2008
Just another day
Four weeks after his treatments, which should end in July, he will have to go back to Dr. Seider to check everything out and then once a year for five years. I think that come August we will both be more than ready for vacation!
As for the kids, Kael is to young to fully understand what is going on, but Brynn does have some questions. This morning she was just asking about Todd's tattoo's , she thinks they are bandaids. Since he doesn't look ill on the outside, it's much easier to explain to her. Honestly, to look at him, you really wouldn't have a clue he has cancer. He really is taking it all very well and i think part of it has to do with Lance Armstrong. The week that he was off from his surgery he found Lance Armstrong's website and did alot of reading, after that he has taken this all in stride. We are so fortunate that he doesn't have the fight that so many others have.
Tuesday, June 10, 2008
Cancer Treatment Center
Friday, May 23, 2008
"For with God nothing shall be impossible." Luke1:37
From the bottom of our hearts we want to thank each and every one of you who have sent a card, said a prayer, delivered a meal or just thought of us. It means so much to us to have such caring people like you that we call our friends. Though we still have a long road to haul- we will reach our destination although at times it may be rocky. We so greatly appreciate everything that everyone has done!! Really, we can not even begin to express the gratitude to all of you who care so much, it fills our hearts with joy to have friends and family like you!
Tuesday, May 20, 2008
The orchiectomy
Friday, May 16, 2008
The results are in...
Wednesday, May 14, 2008
Get the facts
Here are some little know facts on testicular cancer
- TC is the most common type of cancer affecting men between the ages of 15-35 (peaking between the ages of 20-34).
- TC is almost always curable if detected early. ( So all you males out there- do a monthly self-exam! It only takes a minute and it is just as easy as taking your testicle and rolling it between your thumb and forefinger to feel for any lumps. Testicles should be smooth and egg shaped, you shouldn't feel any lumps.)
- Testicular cancers are generally found my men themselves. Tumors can be painless, a hardening, change in size or pain in the testicle.
- TC can be treated with surgery, radiation, chemotherapy, surveillance, or any combination of the above mentioned treatments.
Testicular tumors begin in special sperm-forming cells known as germ cells. 40% of testicular tumors are seminomas which are made of immature germ cells and are very sensitive to radiation therapy. Nonseminomas are made up of mature germ cells, can occur in combinations and are more aggresive. These types are generally treated with a RPLND (retroperitoneal lymph node dissection).
Because of the advances in medical technology, nearly 90% of men with any metastisis are cured!! That is a huge leap from 38 years ago, finding only a 10% cure rate in 1970! Here are some cure rate stats:
- Stage I ( cancer confined to testicle) seminoma- 99%!!!
- Stage I nonseminoma- 98%!
- Stage II (cancer spread to retroperitoneal lymph nodes) - 90%!
- Stage III ( cancer spread beyond lymph nodes into organs) - 50-80%!
Symptoms of testicular cancer include:
- A lump in either testicle.
- Any enlargement of either testicle.
- Significant shrinking of the testicle.
- Hardening or softening of a testicle.
- A feeling of heaviness.
- Dull ache in lower abdomen or groin area.
- A sudden collection of fluid in the scrotum.
- Pain or discomfort in the testicle or scrotum.
- Enlargement or tenderness of the breasts.
What's most important is knowing your body. Know your body enough to know when something isn't right. Do not be afraid to get checked out if you feel something abnormal to you!
Tuesday, May 13, 2008
Canton Urology
Going into this appointment we had already kind of expected to hear that they were pretty certain we were looking at testicular cancer. To tell the truth we did some crying and we are scared, but we know the odds are in our favor. We know that we have an army of people behind us praying each and every day. More importantly we have the will to win. I say "we" because while Todd is the one who is sick, he is part of me. We are one.
Saturday, May 10, 2008
Research day, subject: Testicular Cancer
Last night, I admit, I was scared. Something about the "C" word does that to a person. This morning, however, after doing my digging I have to tell you I feel much better about meeting Dr. Kraus on Tuesday.